Blog

SURVEY FOR THE BRITISH SKIN FOUNDATION

Mon, 30 Jan 2012 16:01:00 GMT

The British Skin Foundation are doing a simple survey on how skin disease affects peoples lives. It’s only 6 questions and would help if you could complete it please. It is annonymous http://svy.mk/wyKS9w

Most frequently asked question

Mon, 30 Jan 2012 13:08:00 GMT

Hello everyone.

Julie is often asked how to go about getting treatment for hyperhidrosis on the NHS. She has a good database on all hospitals providing a service for people who suffer from hyperhidrosis, so please email her if you need to know where to go. It is possible that your GP will not know of services in your area, so please ask.

Merry Christmas

Tue, 20 Dec 2011 12:08:00 GMT

We wish you all a very Merry Christmas and a happy New Year.

November 22nd 2011

Tue, 22 Nov 2011 19:32:00 GMT

Paul Kamudoni, from the Welsh School of Pharmacy, who is a researcher in Cardiff is ready for his phase 2 research on Hyperhidrosis. So, if you'd like to help with this, please contact Paul on: KamudoniP@cardiff.ac.uk

BOTOX ADVICE

Tue, 23 Aug 2011 12:44:00 GMT

We recommended you checked out a new mobile Botox service in our last newsletter. Sadly one of our members has had a bad experience with this company, so we will not be recommending their services again. Julie

Case Study Wanted - Men Only

Sat, 13 Aug 2011 16:39:00 GMT

Jim Pollard runs a website specifically for mens health. He is looking to interview someone so that he can tell of their experience of living with Hyperhidrosis.

Your name or details will not be published. Please do contact Jim from his website if you are able to help out. This will also help an awful lot of other people.

Many thanks

Julie

Changing Faces Survey

Sat, 13 Aug 2011 16:28:00 GMT

Changing faces are an excellent organisation helping people with disfigurements and embarassing conditions. If you can help then by completing their short survey, that would be great thank you.
Julie

Dear All

I am writing to ask if you might be able to help promote some research we are conducting at Changing Faces.
We are keen to understand better the needs of patients with disfiguring conditions and whether they are able to access the help and support they need. We have designed three surveys which can be responded to online using survey monkey in which we will be endeavouring to find out about the current services that are available to provide psychological and social support for people who are living with a condition, injury or marking that affects their appearance:

We are asking adults age 16 and over who live in the UK about their recent experience of support services, what has helped in the past and recommendations they have for the future.
We are asking people who care for a child about provision of support for their child, and/or other members of their family.
We are asking health professionals about their patients' needs and the services available to them. We would also value their opinion on what additional service or support would be useful to particularly what they think our Changing Faces Practitioner development.
- We are interested in both people who have used Changing Faces services before, and those who have not.
  The surveys are available through our website.
- It would be great if you might be able to disseminate this to your stakeholders. We are keen to consult with as many people as possible.
- Many thanks for your time.
- Best wishes
  
  Henrietta Spalding
  Head of Policy and Practice, Changing Faces,
  The Squire Centre, 33 - 37 University Street
  London WC1E 6JN
  email: henriettas@changingfaces.org.uk
  http://www.changingfaces.org.uk; http://www.iface.org.uk
  Team Assistant Tel: 020 7391 9273, International Tel: +44 20 7391 9273
  Fax: 0845 4500 276, International Fax: +44 207 383 3136

Mosquito Repellent Fabric Conditioner

Sat, 13 Aug 2011 16:48:00 GMT

The world’s first natural insect repellent fabric conditioner.

If you suffer from hyperhidrosis, you will inevitably suffer from attracting nasty insects. Mogo have recently launched a new product which is now available in Tesco supermarkets. I have tried it and like it, and it smells good too. MOGO INSECT REPELLENT FABRIC CONDITIONER

With best wishes

Julie

New anti-perspirant to try

Sat, 13 Aug 2011 16:36:00 GMT

Perspirex are offering 10 samples of their product to the first 10 people who contact Nicole Hearn. As with all aluminium chloride antiperspirants, it must be applied at night to a dry skin and washed off in the morning, please see instruction leaflet. If you do try out Perspirex, please let me know via a comment how you get on with it.

Regards

Julie Halford

New website launched

Sat, 13 Aug 2011 16:35:00 GMT

As the months of research, planning, creativity and good old-fashioned hard graft come to fruition, and the new improved website for the UK Hyperhidrosis Support Group is soon to go live (whoopeee!), I’d like to say a big thank you to all who have played a part.

Firstly the British Association of Dermatologists, without whose support the project would not have been possible.

Julie Halford, for her untiring work to raise awareness of hyperhidrosis among medical professionals and sufferers alike, and her willingness to share her in-depth expertise.

Jenna Hedges, who took responsibility for writing some of the content, and did it superbly.

Everyone at Wysi, for patiently answering endless questions and building us a great website. Thank you, and I wish I could promise we’ll be easier to deal with from here on!

George, for turning up and taking on supper and dog walking duties during the months my evenings have been spent hunched over the computer.

And finally me, for donning crampons and climbing a very steep learning curve, and for putting in hours way above and beyond, as they say.

Like a second rate cabaret act, I’ll end by saying “If you like what we’ve done, ladies and gentlemen, please put your hands ……. in your pockets” and support us:

www.charitygiving.co.uk